ADVOCACY TOOLKIT

YOUR VOICE MATTERS

Staff shortages, waitlists, and outdated rules keep people with IDD and families from essential supports. Your advocacy drives solutions that work together—modern med support, recognition of family caregivers, fair DSP pay, 24/7 behavioral health via CCO+, and real housing choice—so people can live safely and independently. Raise your voice today.

PLEASE TAKE 60 SECONDS TO JOIN OUR ONE CLICK CAMPAIGN - PROTECT CARE COORDINATION!

Care Coordination Organizations (CCOs) connect people with IDD and their families to essential community health and human services. Reinstating CCOs in this year’s Human Services Targeted Inflationary Increase (formerly known as COLA) is essential to maintain a stable workforce and protect continuity of care.

For the past 2 years, CCOs have been left out of the Targeted Inflationary Increase, despite facing the same inflationary pressures as other human services providers. Restoring CCO inclusion will help agencies retain experienced care managers and address rising operating costs, so people and families keep getting the support they rely on.

This One Click will send a letter to your local elected officials, urging them to:

  1. Reinstate CCOs in the Human Services Targeted Inflationary Increase (COLA)
  2. Modernize Medication Administration – Pass legislation (A.7284/S.6334) to allow trained DSPs to administer routine medications and related tasks in non-facility settings, with strong safeguards.
  3. Establish a Medicaid pathway to train and compensate eligible family caregivers providing in‑home support for their loved ones with IDD.
Please take 60 seconds: use our One‑Click tool to email your legislators, then share widely.

JOIN OUR
DISABILITY ADVOCACY WORKGROUP!

Your experience as a self-advocate, family member, or IDD professional is valuable. Help us advocate for a more accessible and person-centered system!

Together we will:

  • Discuss how systems of care can be improved
  • Learn how to effectively communicate needs to lawmakers
  • Create your advocacy plan of action

Make your voice part of the change.
Join MFAC Today!

Joining the Member and Family Advisory Council (MFAC) is an opportunity to transform your lived experience into meaningful progress for people with intellectual and developmental disabilities.

By sharing your voice, you help shape policies, strengthen person‑centered care, and guide the future of services across NY State. MFAC is a community of advocates and leaders working together to ensure every person with IDD is heard, valued, and supported.

Share Your Story.
We Want to Hear From You!

We use real stories to guide our policy priorities and to educate legislators. Whether it’s about getting the right supports, crisis points, inclusive education, employment, housing, or care coordination—your experience can lead to change.

You choose how your story is used and how your name appears. Sharing is voluntary, and you can stop at any time.

We want to hear from you!

UPCOMING EVENTS - Please Check back with us soon for additional events.