PLEASE TAKE 60 SECONDS TO JOIN OUR ONE CLICK CAMPAIGN - PROTECT CARE COORDINATION!
Care Coordination Organizations (CCOs) connect people with IDD and their families to essential community health and human services. Reinstating CCOs in this year’s Human Services Targeted Inflationary Increase (formerly known as COLA) is essential to maintain a stable workforce and protect continuity of care.
For the past 2 years, CCOs have been left out of the Targeted Inflationary Increase, despite facing the same inflationary pressures as other human services providers. Restoring CCO inclusion will help agencies retain experienced care managers and address rising operating costs, so people and families keep getting the support they rely on.
This One Click will send a letter to your local elected officials, urging them to:
- Reinstate CCOs in the Human Services Targeted Inflationary Increase (COLA)
- Modernize Medication Administration – Pass legislation (A.7284/S.6334) to allow trained DSPs to administer routine medications and related tasks in non-facility settings, with strong safeguards.
- Establish a Medicaid pathway to train and compensate eligible family caregivers providing in‑home support for their loved ones with IDD.
Please take 60 seconds: use our One‑Click tool to email your legislators, then share widely.
JOIN OUR
DISABILITY ADVOCACY WORKGROUP!
Your experience as a self-advocate, family member, or IDD professional is valuable. Help us advocate for a more accessible and person-centered system!
Together we will:
- Discuss how systems of care can be improved
- Learn how to effectively communicate needs to lawmakers
- Create your advocacy plan of action
Make your voice part of the change.
Join MFAC Today!
Joining the Member and Family Advisory Council (MFAC) is an opportunity to transform your lived experience into meaningful progress for people with intellectual and developmental disabilities.
By sharing your voice, you help shape policies, strengthen person‑centered care, and guide the future of services across NY State. MFAC is a community of advocates and leaders working together to ensure every person with IDD is heard, valued, and supported.
Share Your Story.
We Want to Hear From You!
We use real stories to guide our policy priorities and to educate legislators. Whether it’s about getting the right supports, crisis points, inclusive education, employment, housing, or care coordination—your experience can lead to change.
You choose how your story is used and how your name appears. Sharing is voluntary, and you can stop at any time.
We want to hear from you!
FIND YOUR ELECTED OFFICIAL
Click on the live links below for contact information:
Governor Kathy Hochul
Find Your NY State Senator
Find your NYS Assembly Member
NY State Senator Patricia Fahy, Chair, Senate Disabilities Committee
NY State Senator Samra G. Brouk, Chair of the Committee on Mental Health
Assemblymember Jo Anne Simon, Chair of the Assembly Committee on Mental Health
Assemblymember Angelo Santabarbara, Chair of the Assembly Committee for People with Disabilities
DOWNLOAD AND SHARE SOCIA MEDIA GRAPHICS
Click on the images below, save, and share on social media:
UPCOMING EVENTS
AccessCNY and Arc of Onondaga Rally
February 27, 2026 at 10 AM
DoubleTree by Hilton 6301 NY 298, East Syracuse, NY 13057
Join family members, direct support professionals and people with IDD who receive support from AccessCNY and Arc of Onondaga as they share why funding is needed to ensure the sustainability of essential supports and services in CNY.
#InvestInMe #InvestInIDD – wear orange!
RALLY CONTACT EMAIL: jjewett@arcon.org
or Contact Joanna at 315-401-0917
5 Borough Virtual Legislative Breakfast
March 6, 2026 at 10 AM
Hosted by NYDA/IAC
Intended for NYC based members, families, providers, CCO staff and public
NYDA Rally at the Capitol Building
March 10, 2026 at 11:30 AM
Hosted by NYDA
Intended for any HCBS Waiver recipients, members, families, providers, CCO staff and public
Held in the NY State Capitol Building War Room – 2nd Floor
#InvestInUs – wear orange!
RALLY CONTACT EMAIL: Info@NYSDisabilityAdvocates.org
Rally in the Valley 2026
March 13, 2026 at 11 AM
Join the rally on Friday, March 13th at 11 AM at the Rockland Community College Fieldhouse in Suffern, NY!
Stand together for affordability, dignity, and investment in disability, mental health, and long‑term care services. Bring your signs and your voice. Let’s make an impact!